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Charlotte man runs to raise money for dementia research

More Information

  • What is PPA?

    Primary Progressive Aphasia is a form of dementia that progressively causes a person to lose their ability to communicate and comprehend language. According to Northwestern University’s Feinberg School of Medicine website, the degenerative brain disease can occur in people as young as their 40’s.

    For more information on PPA, go to www.brain.northwestern.edu.


  • Want to learn more?

    Visit www.run4papa.com to watch video from Jason Boschan’s Great Wall Marathon, learn more about Papa and PPA and read blog posts chronicling Boschan’s fundraising and training journey.



More than 900 marathon runners started the race along the wall, but only 570 crossed the finish line.

Charlotte’s Jason Boschan was among those who can say they conquered 5,000-plus stairs, miles of dirt roads, rocky terrain and heat while staying ahead of dehydration, physical and mental exhaustion.

Boschan, 33, ran the Great Wall Marathon May19 as the culmination of a year-long fundraising and awareness initiative he created called “Run4Papa.”

In the 315 days leading up to the race, Boschan was on a journey to bring international attention to Primary Progressive Aphasia (PPA), the rare form of dementia his grandfather, Dr. Louis “Papa” Heyman, was diagnosed with in 2009.

He partnered with the Cognitive Neurology and Alzheimer’s Disease Center of Northwestern University’s Feinberg School of Medicine (CNADC), to raise nearly $54,000 for research in less than a year.

Boschan said he approached the Chicago center about raising money for its research and they agreed to waive administrative fees if Run4Papa raised $20,000. Boschan hit that benchmark in 100 days and raised his goal to $50,000. He said all money raised went straight to the center and does not cover his expenses.

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Boschan, a financial analyst with LPL Financial, said he’s not a runner by nature. His only other marathons were in New York 2010 and the 2000 London Marathon, both of which he came into by chance. In London, he responded to a newspaper ad offering race spots to people who could raise the U.S. equivalent of $1,200 for children with disabilities. “There’s usually a two- to three-year waiting list for the race,” he said.

With New York, a friend who’d qualified ended up injured and offered Boschan the opportunity with only 72 hours until the starting gun.

Still, Boschan has always played sports and said he was ready on both occasions.

But with Run4Papa, Boschan trained in several states to prepare for the Great Wall. He spent long weekends in Denver to experience high-altitude running, ran the Warrior Dash in Huntersville to experience terrain and went to Chicago and New York to run tower races.

Boschan blogged about every event on Run4Papa.com and found support coming from the international running community.

He also found that members of the medical and Alzheimer’s communities wanted to show their support as well. PPA is a form of Alzheimer’s.

Through various fundraisers leading up to the Great Wall – like the 10-day $5K for 5K event around Charlotte and an uber-competitive “Turkey Bowl” football game over Thanksgiving in Michigan – Run4Papa exceeded its $50,000 goal.

His grandfather and Boschan’s parents live together in suburban Detroit, where “Papa” practiced pediatric medicine for more than 50 years.

“Internally, his mind is still very sharp. The disease is debilitating him, not old age,” Boschan said, noting that his grandfather carefully read and approved the biography posted on the website.

While Boschan has a few ideas in the works on what goals to set next, he hasn’t finished with PPA. This fall, the CNADC Advisory Board could vote to install him as a junior board member to continue fundraising and building awareness.

“This could be a life-changing opportunity, it’d open so many doors,” he said.

What makes him happiest is that his grandfather got to see it all. “It was a fear of mine a year ago that he wouldn’t be around or he wouldn’t understand … I’m relieved he’s still here to see what happened.”

Trenda:704-358-5089.


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